Monthly Archives: September 2015
- Sonny Lang, 22, was diagnosed with cystic fibrosis at 13 months old
- Had heart and lung transplant at age 4, and was told she wouldn’t live to 15
- Her health deteriorated but her body is too weak for another transplant
Imagine that you’re a mere 22 years old. We assume you’ve imagined you’d be out causing havoc…. Stumbling in through your front door at 4am like everyone else that age does right?
Instead imagine that a disease by the name of cystic fibrosis has taken it upon itself to clog your lungs full of mucus making even a few steps painfully exhausting. …Imagine that your mere 22 years have included a heart and lung transplant as a tiny toddler.. A catalogue of surgeries after numerous heart attacks/collapsed lungs/internal bleeding from ruptured stomach ulcers.
Imagine the years of repeatedly having your back lovingly massaged ( gently beaten by devoted family members) to remove mucus from your lungs.
We hope you’ve left space in your imagination to think about the copious amounts of medication you would have to take daily in order to just get by. .. The amount of planning that has to go in to taking a well deserved holiday because of these medications and that’s you hastily assuming that this delightful disease will leave you deemed ‘healthy’ enough to fly!!
Let’s imagine we are healthy enough to fly.. Heck I think we’ve deserved it after a bad year of infections, heart attacks and weeks on end spent on an isolated CF ward after our lungs have given out don’t you?? Yes We hear you cry?? Us too… But how on earth are we going to afford to insure ourselves!! Oh that’s right.. We can’t!
We could go on and on till We were turning blue in the face about how unfair life living with CF is and that’s the difference between us and our darling friend Sonny.
She has CF.. We don’t, yet every single day she faces all we have described to you above and more with the most positive attitude we’ve ever known and the biggest most enchanting smile to match.
Whist we and many others close to her sometimes dwell on the unfairness of life and CF she chooses to live each day with a fullness that we are so envious of.
Now she’s at a point where her delightful attitude to life alone won’t help her through the trials that Cystic Fibrosis cruelly throws her way. She’s exhausted from battle after battle with her body and she needs a little help.
We’re trying to raise some money to make Sonny’s life as carefree as her attitude to it by helping her buy a mobility scooter and possibly funding a holiday depending on how much we raise. Click Here
The scooter will give Sonny the freedom to live her life without the restraint of her lungs telling her it’s home time when all she really wants to do is catch up with friends etc. It will give her the independence to go to the shop without being exhausted after.
And the holiday.. Well that’s a self explanatory well deserved break after playing host to everyone’s worst nightmare her whole life!!
Now we’ve wittered on enough. Please go back to imagining for us. Imagine £5/£10 disappearing from your wallet! Did you notice it… We didn’t think so.
Now imagine the difference you can make to our lovely friends life with that same amount of money.. Feels good doesn’t it. Please donate it.
Thank you for reading.. And hopefully donating to this beautiful deserving lady ..
Beth & Stacey xx
To: North Yorkshire Fire Authority and the counties 7 MP’s
Brigade secretary Steve Howley said while fires developed slowly for the first five minutes, after that time they doubled in size every minute. He said the loss of more than a fifth of full-time firefighters would have dramatic implications.
Mr Howley said: “It is absolute madness and the figures don’t stack up.
“Firefighters don’t go to work to die and that’s the stark reality facing firefighters in North Yorkshire.
“There’s no fat left on the bone to trim and now we are cutting the muscle.
“Hopefully the public will be as incensed as the firefighters are and will force the politicians to go away and find alternatives.”
He said the service could make savings elsewhere, such as ending five-figure payments to middle managers to attend incidents, despite them not attending any.
Tadcaster Young Firefighters has been running since 2000 and over this period approx. 100 young people have completed the course.
On September the 24th we are looking to start with our next cohort of students and there are still 5 places available.
The course runs for 2 years and during this period candidates will work towards a level 2 BTEC Certificate “Fire and Rescue Services in the Community”
Candidates will be given the opportunity to partake in fire service activities and learn a range of skills such as team work, communication skills, problem solving, discipline and first aid. The qualification units cover subjects such as pumps, hose, ladders, extraction techniques, Leadership, and science of fire.
Candidates will be challenged throughout the course having to work at height, in confined spaces and in wet conditions however they will be supervised and trained by fully competent firefighters throughout their time on the course.
The course runs for 2 hours a week between 7pm and 9pm on a Thursday evening and is for young people between the ages of 14 and 18. Each candidate is provided with their own set of fire kit for the duration of the course.
To date 10 students from across the county have completed the course and gone on to work in the retained fire service.
If you would be interested in joining please contact Station Manager Bob Hoskins on email@example.com